5/22/14

DEAR IDSA ( in honor of THE MAYDAY PROJECT)

★☆☆☆☆ Dear IDSA; Because of your outdated and seriously flawed Lyme Disease diagnostic and treatment guidelines, I was not properly diagnosed, even after bringing the tick that bit me to my state health agency. I am from Lyme CT, the most endemic area of the U.S. and still, doctors are fearful to diagnose me, seven years later, and now very ill. I had a rash, all the tell tale symptoms, and now LESIONS on my brain, and still IDSA doctors are saying I am suffering from anxiety! My life could have gone so differently. Instead, because of the corruption and denial, my life, and my son's will never be the same. I went from SIX FIGURES TO FOOD STAMPS because I was too sick to work and my Long Term Disability claim was denied BECAUSE OF YOUR GUIDELINES. MY SON AND I WENT HOMELESS, because my insurance wouldn't pay for treatment due to your guidelines. My son and I are now hungry and eating only one meal a day because of your guidelines, my SS disability has been denied, I am much too sick to work, and am PENNILESS, all because of your refusal to revise your guidelines! I don't know how you sleep at night; I am not just a number, but a mom, a sister, a daughter and now an advocate; I dedicate my life to bringing change and awareness to the corruption. Just wait until this happens to you or a loved one….you will be looking to us for advice on how to get well; a short course of antibiotics will not cut it! PLEASE DO THE RIGHT THING AND REVISE THESE GUIDELINES. RECOGNIZE THE TRUTH AND STOP THE LIES!


IDSA's Center for Global Health Policy

Non-Profit Organization

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