Hi Robin,
I saw your comment on someones post, you asking about Medi-Cal docs etc related to Lyme. I have had Lyme since 2000 and Medi-Cal since 2004. In California they absolutely do not recognize Chronic Lyme and therefore pay for nothing related to it. In fact, the multitude of doctors I have seen do just about anything they can to discount any complaints I have related to Lyme, tell me it isn't real, or just ignore what I say all together. I am a registered nurse and found the treatment and the behaviors were my imagination at first so I started to bring my friend, a nurse too, to my appointments. She was blown away hearing some of the things the docs say or ignore!
I didn't want to burst your bubble but hopefully save you some time and energy in thinking that you are going to find much help for Lyme with Medi-cal or most docs period. I have now learned not to mention Lyme if I want to be taken serious about anything I go to a doc for. I hope you have better luck where you live! But the bottom line is this....if Chronic Lyme is acknowledged as a real disorder that means they must pay for treatment. Since there is no well defined treatment that works for everyone that is inexpensive it means long term open ended treatment that is very expensive! They don't want to pay, period! We eat it because it is not cost effective to them!
I wish you all the best in you
I saw your comment on someones post, you asking about Medi-Cal docs etc related to Lyme. I have had Lyme since 2000 and Medi-Cal since 2004. In California they absolutely do not recognize Chronic Lyme and therefore pay for nothing related to it. In fact, the multitude of doctors I have seen do just about anything they can to discount any complaints I have related to Lyme, tell me it isn't real, or just ignore what I say all together. I am a registered nurse and found the treatment and the behaviors were my imagination at first so I started to bring my friend, a nurse too, to my appointments. She was blown away hearing some of the things the docs say or ignore!
I didn't want to burst your bubble but hopefully save you some time and energy in thinking that you are going to find much help for Lyme with Medi-cal or most docs period. I have now learned not to mention Lyme if I want to be taken serious about anything I go to a doc for. I hope you have better luck where you live! But the bottom line is this....if Chronic Lyme is acknowledged as a real disorder that means they must pay for treatment. Since there is no well defined treatment that works for everyone that is inexpensive it means long term open ended treatment that is very expensive! They don't want to pay, period! We eat it because it is not cost effective to them!
I wish you all the best in you
3 comments:
Robin, I am truly honored by your use of my comment! We face unheard of obstacles such as having to convince medical professionals we are sick and find one who believes in chronic Lyme and is willing to risk their license and treat us. I had a witnessed tick bite, the hallmark bullseye rash, all the typical symptoms, and multiple lab tests positive for Lyme. My PCP treated me 3 months of Doxycycline and Flagyl but each time I stopped the antibiotics I felt horrible so referred me to the head of the Infectious diseases department at one of the top research hospitals here for IV antibiotic therapy. This doctor tells me I am not sick and to leave his office. I was shocked and asked what other "proof" he needed, was the lab results not enough? He replied that the lab results were not "positive enough in his opinion." What??? Ok, so back to my PCP who decides to brave it and treat me herself, sends me to have PICC line inserted. A few months into treating me with IV abx my doctor is being investigated for my treatment and her medical license was on the line. Someone had turned her in to the medical board....this person we found out was the other doctor in her practice, her husband!!! The following month my medical insurance dropped me for non payment they said. I had made my payment but it was late- less than 30 days but I was too sick to even know what to do. I was bedridden, used a wheelchair, and could not even say my own phone number let alone try and fight with the insurance company! There is way more to my story but mine is not any more weird than what other Lyme sufferers have had to endure! I am a nurse and can't imagine how others without any medical background even manage to deal with the nightmare Lyme makes our life become! Heaven help us all Please!
OMG!!! WE NEED TO TALK; MY INSURANCE DROPPED ME TOO FOR A LATE PAYMENT BECAUSE THE FIRST OF THE MONTH FELL ON A SUNDAY; TRIED TO MAKE PMT 9 AM MON; REFUSED; ALREADY HAD $40,000 NEURO TESTING DONE; BACK BILLED ME; TOO MANY PEOPLE HAVE THESE STORIES; WE ALL NEED A LAWYER
Robin, I want to caution you regarding any help you may receive and SSI. Be very careful because if they get wind you are getting any help with anything even medical help they will consider it income and deduct it from your monthly benefit! This is a very precarious position to be in as it feels like they really don't want you to get better to be able to help yourself. Peace, Vicki Fassett
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